AlzAuthors is built by caregivers for caregivers. Our mission is to provide carefully vetted books and blogs to help you find the answers and guidance you need. The majority of our authors have “walked the walk” with a parent, spouse, or other loved one, and have chosen to write their stories as balm for the soul, and to share with others the information they wished they’d had on their own dementia journeys.
June is Alzheimer’s and Brain Awareness Month, a time to increase understanding of what dementia is and how it impacts the lives of those it touches. It’s also a great time to work to decrease the stigma and silence that too often accompanies an Alzheimer’s diagnosis.
Each June we host a book sale and giveaway to help caregivers and those concerned about dementia find knowledge, guidance, and support offered through shared wisdom and experience. We encourage you to build a library of carefully vetted books to help guide and inspire you every day.
Starting today through June 22nd you can take advantage of this excellent opportunity to check out some of our books for free or reduced prices. We offer a variety of genres, including fiction, memoir, non-fiction, and children’s and teen literature. Most are available in Kindle and ebook, and many are available in paperback and audio.
Our books are written from a deep place of solidarity, vulnerability, and love. May you find one – or two, or more! – to help guide you on your own dementia journey.
See the full list of participating books at here.
When Lewy Body Dementia entered my home, the world as I knew it began to shift, and I found myself in a constant state of confusion. My sweet mother, who lived in our home, was hallucinating, her stories and behavior were becoming more and more bizarre, and I had no idea why – neither did any of the doctors I consulted. Lost and alone, I could feel myself becoming a little more unglued with every passing day while I watched the family rules fly out the window one by one. “Wait! I depend on those family rules.” They may not be the same as the neighbor’s rules but they’re mine, they’ve been mine forever, and I’m comfortable with them.
Written or unwritten family rules become our guidebook. Even as adults when we partner up with someone else who has a different set of rules, it doesn’t take long before we meld them together and find comfort and harmony with the new set. When dementia crept into my life and disorder began to rear its ugly head, my home felt like a foreign country and I didn’t speak its language. Confusion and disorder visited before. I was used to a little fracture here and there in my routine. My feathers got ruffled, I talked about it, or researched it, and sometimes received a remedy for an outside source. This time, as hard as I looked I couldn’t find a single answer and it wasn’t long before all hell broke loose and my harmonious routine turned into anarchy. That’s when I joined a support group and the company of others. That’s when I learned I had to think outside the guidebook.
My mother was diagnosed with Lewy Body Dementia years after my search for answers and years after family harmony fell apart. After a few weeks of processing the information, I looked for some comfort in a book. I found a few books related to the topic but they were all medical or clinical. I wanted a memoir. A book that would make me laugh, cry, relate, and feel not so alone. Having found nothing, I gathered up my years of journals, and wrote one.
Writing Lewy, Mom, and Me was difficult. Re-living the journey over and over was often painful, but also has been enriching. In the end it brought me a huge sense of accomplishment – especially when I hear from my readers. Many people have reached out to thank me for sharing my story and tell me how closely they relate to my stories. I am so happy to be able to offer the kind of support that I was looking for when I was lost and searching for comfort.
Here are a couple of important things to know about Lewy Body Dementia from one of my favorite websites: